Perceptions of illness and stress among parents of children and adolescents with cancer undergoing treatment

Cancer is one of the leading causes of illness in children/adolescents and is associated with a symbolic representation of death, incurability and intense suffering. For parents, the diagnosis of a chronic illness is one of the most stressful episodes they can experience. Their perception of the illness, as well as their emotional adjustment and management of the situation, is crucial, as the treatments must be managed in the family's daily life. In a context of emotional and functional imbalance, it is natural for parents to feel insecure, anxious and overburdened in caring for their child and to experience stress. This may be influenced by variables such as the type of cancer, survival expectations, type of treatment, and perceptions of illness. In this context, this research aims to improve our knowledge of parents' perceptions of their child's cancer and their stress. This knowledge will facilitate professional understanding and communication. On the other hand, by knowing the most affected dimensions of parents' well-being, professionals will be more aware of situations that need specialized help or intervention.
This is a quantitative, descriptive-analytical and cross-sectional study. The data will be collected at the Pediatric Oncology Unit of the Children's Hospital of Coimbra, through the application of a self-administered questionnaire to the parents of a child/adolescent with cancer, 3 months after the clinical diagnosis.

  1. Analisar a perceção de doença dos pais das crianças e adolescentes com doença oncológica em fase de tratamento.
  2. Analisar o distresse dos pais das crianças e adolescentes com doença oncológica em fase de tratamento.
  3. Analisar as relações entre perceção da doença e o distresse dos pais destas crianças e adolescentes.
  4. Analisar as relações das variáveis sociodemográficas e clínicas com as variáveis perceção da doença e com o distresse dos pais destas crianças e adolescentes.

  • CHUC - Hospital Pediátrico
  • Project Information