In the context of the current Associated Study, an intervention is defined as an activity or action framed within the goals and values of nursing and undertaken by healthcare providers with the purpose of enhancing the wellbeing and quality of care of people with health-related needs. Such actions might even be undertaken by patients themselves as in self-care activities (Naylor, 2003; Richards & Rahm Hallberg, 2015). Within the wider sphere of intervention research, the complexity of health interventions has gained special attention during recent years. Scholars argue that simplicity might be a chimera when interventions relate to the promotion, support or change of health behaviours (Richards & Rahm Hallberg, 2015). If defining ‘intervention’ is quite consensual and straightforward, identifying the complexity elements of an intervention is in itself a challenge.
The variability in potential complexity issues makes the process of defining ‘complex’ difficult and reinforces the need to have a comprehensive methodological guidance from early development to long-term implementation. Such guidance is crucial to address key uncertainties, thereby ensuring that sufficient effort has been made to develop and pilot the intervention before departing to a full trial, and to ease the process of implementation into clinical daily practice (Richards & Rahm Hallberg, 2015). Generally, person-centred interventions represent a movement from the one-size-fits-all view to having more respect for and integration of the person’s unique characteristics, values and preferences (Lauver et al., 2002). Authors have argued that, when developing person-centred interventions, it is important to reflect on: a) the dimensions of the intervention components that enhance person-centredness; b) the person-centred means of delivering it; and c) the actual relevancy of the improved outcomes to the person (Lauver et al., 2002).
Cohen, S., Underwood, L. G., & Gottlieb, B. H. (2000). Social support measurement and intervention: A guide for health and social scientists NY: Oxford University Press.
Coulter, A., & Ellins, J. (2006). Patient-focused interventions: a review of the evidence . London, 90 Long Acre, WC2E 9RA: The Health Foundation and Picker Institute Europe.
de Silva, D. (2014). Healping measure person-centred care . Long Acre, London WC2E 9RA: the Health Foundation, 90.
Ekman, I., Swedberg, K., Taft, C., Lindseth, A., Norberg, A., Brink, E., . . . Sunnerhagen, K. S. (2011). Person-centered care--ready for prime time. Eur J Cardiovasc Nurs, 10 (4), 248-251. doi:10.1016/j.ejcnurse.2011.06.008
Krawczyk, M., Sawatzky, R., Schick-Makaroff, K., Stajduhar, K., Öhlen, J., Reimer-Kirkham, S., . . . Cohen, R. (2019). Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care. Qualitative Health Research, 29 (4), 510–521.
Lauver, D. R., Ward, S. E., Heidrich, S. M., Keller, M. L., Bowers, B. J., Brennan, P. F., . . . Wells, T. J. (2002). Patient-centered interventions. Research in Nursing and Health, 25 (4), 246-255. doi:10.1002/nur.10044
McCormack, B., Borg, M., Cardiff, S., Dewing, J., Jacobs, G., Janes, N., . . . Wilson, V. (2015). Person-centredness – the ‘state’ of the art. International Practice Development Journal, 5 (Suppl) (1).
McCormack, B., & McCance, T. V. (2006). Development of a framework for person-centred nursing. Journal of Advanced Nursing, 56 (5), 472-479. doi:10.1111/j.1365-2648.2006.04042.x
McCormack, L. A., Treiman, K., Rupert, D., Williams-Piehota, P., Nadler, E., Arora, N. K., . . . Street, R. L., Jr. (2011).
Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach. Social Science and Medicine, 72 (7), 1085-1095. doi:10.1016/j.socscimed.2011.01.020
Naylor, M. D. (2003). Nursing Intervention Research and Quality of Care: Influencing the future of healthcare. Nurisng Research, 52 (6), 380-385.
Olsson, L. E., Jakobsson Ung, E., Swedberg, K., & Ekman, I. (2013). Efficacy of person-centred care as an intervention in controlled trials - a systematic review. Journal of Clinical Nursing, 22 (3-4), 456-465. doi:10.1111/jocn.12039
Richards, D. A., & Rahm Hallberg, I. (2015). Complex interventions in health: an overview of methods . Abingdon, Oxon: Routledge.
Ventura, F. (2016). Person-centred e-support - Foundations for the development of nursing interventions in outpatient cancer care. (PhD), University of Gothenburg, Gothenburg, Sweden. Retrieved from http://hdl.handle.net/2077/39524
Wild, D., Grove, A., Martin, M., Eremenco, S., McElroy, S., Verjee-Lorenz, A., & Erikson, P. (2005). Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value in health, 8 (2), 94-104
Expected Results
1. Study "Exploring Interpretive Description in Intervention Research"
The main outcome of the critical review is expected to be a procedural map to facilitate the implementation of ID in the study of clinically relevant issues in the context of applied health sciences.
2. Study "Person-centred care Inventory: Scale Translation and Cultural Adaptation"
The main outcome of this research activity will be a Portuguese, validated and culturally adapted version of the PCI
for patients, family and staff. Moreover, the revision of the evidence on person-centred practice in the Portuguese
context is expected to contribute to map potential barriers and facilitators to the development and
implementation of person-centred practice.
01/01/2020
01/01/2023
Care Systems, Organization, Models, and Technology