Citizen involvement in research processes and knowledge extension to society

Research centers and funding organizations encourage citizen participation in the various stages of the research process because it enriches science. Similarly, universities, research units, and researchers have a social responsibility to contribute to activities that extend their expertise to society. This concept is known as "societal extension." To encourage the development of meaningful research that responds to real societal needs through the creation of knowledge, products, and services, citizen involvement and society extension should be assessed as strategic axes for research development. Thus, research activities within this strategic development axis of the Health Sciences Research Unit: Nursing (UICISA: E), are necessary to promote a greater understanding of how to engage citizens, transfer knowledge to society, and explore implementation, monitoring, and innovation processes within citizen-based science.

Finalidade

  • Criar um centro de Cidadãos e End-users.



Objetivos:

  1. Desenvolver investigação sobre a ciência cidadã;

  2. Estabelecer processos e protocolos para o desenvolvimento do Centro de Cidadão/ End-user (CCE) da UICISA: E (Ex: estabelecer os critérios de inclusão para uma bolsa de end-user/cidadão; definir processos de recrutamento; fluxos, etc );

  3. Operacionalizar e implementar protocolo(s) para o envolvimento do cidadão nos desenhos de investigação/ projetos de investigação;

  4. Avaliar o impacto do envolvimento do cidadão/ end-user no processo e nos resultados dos projetos da UICISA: E;

  5. Operacionalizar e implementar protocolo(s) para a extensão do melhor conhecimento/ produtos ou serviços para a sociedade/cidadão (em parceria com a Unidade de extensão);

  6. Avaliar o impacto nos processos e resultados da extensão do conhecimento, produtos ou serviços produzidos na UICISA: E.

  7. Explorar as questões ético-legais da ciência cidadã.

  • Rede Portuguesa Ambientes Saudáveis, inteligentes e Amigáveis
  • SHAFE – Smart healthy Age-Friendly Environment
  • Cost Action – Net 4 Age-Friendly
  • European Innovation Partnership on Active and Healthy Ageing


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    2. Haklay, M. (2013). Citizen science and volunteered geographic information: Overview and typology of participation. in Crowdsourcing Geographic Knowledge: Volunteered Geographic Information (VGI) in Theory and Practice vol. 9789400745872 105–122.

    3. South, A. et al. (2016). Models and impact of patient and public involvement in studies carried out by the Medical Research Council Clinical Trials Unit at University College London: Findings from ten case studies. Trials 17(1), 1-13.

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    10. Perkmann, M., Salandra, R., Tartari, V., Mckelvey, M., & Hughes, A. (2021). Academic engagement : A review of the literature 2011-2019. Research Policy, 50(1), 104114. https://doi.org/10.1016/j.respol.2020.104114.

    11. Tembo, D., et al. (2021). Effective engagement and involvement with community stakeholders in the co-production of global health research. The BMJ, 372, 1–6. https://doi.org/10.1136/bmj.n178

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    13. Vale, C. L., Thompson, L. C., Murphy, C., Forcat, S. & Hanley, B. (2012). Involvement of consumers in studies run by the Medical Research Council Clinical Trials Unit: Results of a survey. Trials 13, 1–10

    14. Ahmed, S. M. & Palermo, A.-G. S. (2010). Community Engagement in Research: Frameworks for Education and Peer Review. Am. J. Public Health 100(8), 1380–1387.

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    19. Lakomý, M., Hlavová, R., Machackova, H., Bohlin, G., Lindholm, M., Bertero, M. G., Dettenhofer, M. (2020). The motivation for citizens’ involvement in life sciences research is predicted by age and gender. Plos one15(8), e0237140.

    20. Abelson, J., Wagner, F., DeJean, D., Boesveld, S., Gauvin, F. P., Bean, S., Axler, R., Petersen, S., Baidoobonso, S., Pron, G., Giacomini, M., & Lavis, J. (2016). Public and patient involvement in health technology assessment: a framework for action. International Journal of Technology Assessment in Health Care, 32(4), 256–264. https://doi.org/10.1017/S0266462316000362

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    22. Silva, R. and Guardado, D. (2021) ‘O Envolvimento do Cidadão nas IC&DT - Artigo de Opinião’. Rede Portuguesa Ambientes Saúdaveis, Inteligentes e Amigáveis.

    • Silvia Manuela Dias Tavares da Silva
    • Rosa Carla Gomes da Silva
    • Elaine dos Santos Santana
    • Ana Filipa dos Reis Marques Cardoso
    • Daniela Filipa Batista Cardoso
    • Maria da Conceição Gonçalves Marques Alegre de Sá
    • João Luís Alves Apóstolo

    Project Information

    • Start Date

      01/01/2022

    • Completion date

      31/07/2026

    • Thematic line

      Education and development of the discipline

    • Target population
    • Coordination Team
      • Silvia Manuela Dias Tavares da Silva Coord. PI
      • Rosa Carla Gomes da Silva Coord.
      • Maria da Conceição Gonçalves Marques Alegre de Sá Coord.
      • Armando Manuel Marques Silva Coord.